Help Baby Kai Appeal Fund

 

Baby Kai was born in December 2022, and by the time he was 5 months old, it became apparent that he wasn’t able to move his limbs or head as much as expected for his age. After undergoing several tests and assessments, Baby Kai was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 in mid-2023.

SMA is a rare genetic neuromuscular disorder that causes progressive muscle weakening and atrophy, leading to a loss of movement. This condition can impact walking, upper body mobility, as well as breathing and swallowing. While there is no cure for SMA, there are treatment options available to help manage its symptoms.

The Sandymount Hotel team has a deeply personal connection to Baby Kai, as his grandmother was a valued member of the team. This year, we have been raising funds to support the ‘Help Baby Kai Appeal Fund.’ All donations will go directly toward assisting with Baby Kai’s treatment and daily care, including:

·         Hospital and home visits for physiotherapy

·         Private physio to complement the hospital provided physio

·         Speech & language therapy

·         Occupational therapy

·         Baby kai`s future needs

·         Vehicle suitable for wheelchair access

·         Hydrotherapy treatments to try to strengthen Kai`s limb and neck movement

 

To donate visit: gofund.me/66d57fde

 

Donate Now

 

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